The Cerebra Sleep Project

Researchers at the University of Birmingham have partnered with Cerebra to explore how poor sleep impacts daytime outcomes (e.g., executive function, anxiety) in children with rare genetic syndromes. The researchers will work together with families of children with rare syndromes and healthcare professionals to co-produce a behavioural sleep intervention and employ a pre- and post-intervention design to examine whether changes in sleep following the intervention are associated with changes in child daytime behavioural and cognitive outcomes, overnight child-caregiver interactions, and caregiver sleep and well-being.

During a direct assessment phase both immediately before and after the intervention implementation parents/caregivers will complete a telephone interview and online survey, and parents/caregivers and the person they care for will complete a sleep assessment (using MotionWatches) and a remote, play-based battery of executive function tasks.